RUMI: Retrieving Understandable Medical Information
While decision-making for any cancer is complex, this is especially true for lung cancer as its treatment options often involve moderate to significant morbidities, and the disease itself has a high mortality rate. A patient's ability to cope with cancer is influenced by a number of factors, including knowledge about the disease and the resultant sense of empowerment to understand and participate in his/her own healthcare and to make decisions. Increasingly, oncology patients are going online to learn about their disease and treatment options. Unfortunately, the quality and types of information on the Internet is variable, and patients can have difficulty determining how such information relates to their own situation: there is a lack of tailored information specific to the individual, and the particulars of the process of care are abstruse. RUMI (Retrieving Understandable Medical Information) is aimed at making a lung cancer patient's own electronic health record (EHR) understandable to him/her. The RUMI project aims to educate lung cancer patients to better comprehend the details of their own disease trajectory.
The specific aims of this project are:
- To develop a lung cancer knowledge and process model (LCKPM) that integrates information about the disease with the clinical process of care and decision points.
- To automatically map each lung cancer patient's medical record to the LCKPM.
- To map specific elements of public information resources into the LCKPM.
- To construct and evaluate a patient web portal that permits lung cancer patients to view EMR content in the context of the LCKPM, providing tailored information and decision explanations.